I have early onset torsion dystonia. A rare genetic disease that makes my muscles move uncontrollably especially when I'm under stress. Fortunately It's not life threatening; However, it doesn't have a known permanent treatment. It started when I was in middle school but I didn't tell anybody. I was able to manage it very well. From "managing well" I mean I developed tactics that helped me hide it from others. Almost nobody has noticed my abnormal muscle movements. (Maybe less than ten people have seen me in those weird postures and said to themselves what the hell is wrong with him?) Even my parents didn't notice and never thought that something was wrong with me. (Yeah! I'm that good at hiding the truth!)

At the time I thought I had MS or some sort of terminal disease. I was afraid to face the truth so I kept it to myself and didn't talk about it with anybody. Then almost four years ago when I was under a lot of pressure and my respiratory system started acting up and breathing was hard for me, I finally broke my silence and told my family about my condition. They were very surprised to hear about it. The next couple of weeks I went to various kinds of doctors and specialists to find out what was wrong with me. This is a rare disease and apparently not many doctors can diagnose it. At last some neurologist diagnosed me with torsion dystonia. I read lots of papers and articles about it and found out that my symptoms perfectly matched with the said disease. The neurologist prescribed some medications but they all worsened my conditions so I stopped taking them. I learned to live with this disease and adapt myself with it.
Few people (maybe five or six) know about my condition. I've always felt ashamed to explain my conditions to other people and avoided talking about it on Retrospring or other social media but at last I said it!

[ Sorry for this long ass answer. Just me ranting about another aspect of my life!]